Upcoming Events (See Recent Events Below)
Date & Details - Click the links below.
Neurologic Disorders Support Group – Ann Arbor, MI
First Tuesday of each month, 6:30pm-8:00pm
The Neurologic Disorders Support Group Meetings are held on the first Tuesday of the month.
Lower Level Conference Room B1 407B at the East Ann Arbor Health and Geriatrics Center (4260 Plymouth Rd, Ann Arbor, MI 48109). map and directions.
If you have any questions, please contact Lynette Girbach at firstname.lastname@example.org or by phone at (734) 936-3087.
MDA monthly Support Group – Nashville, TN
First Tuesday of each month
Contact Steve at email@example.com (an SPF member who participates in the group)
AlphaOne Support Group – Bangor, ME
Meeting the first Thursday of each month from 5:00pm – 7:00pm
Meeting for people with spinal cord injuries and diseases. Always looking for speakers, and family & friends are also welcome!
For questions, call (800) 300-6016.
Ataxia monthly Support Group – Norristown, PA (near Philadelphia)
2nd Saturday of the month
Mercy Suburban General Hospital. Organized by Liz Nussear, an SPF member. Contact firstname.lastname@example.org
Ataxia quarterly Support Group – Charlotte, NC
December, March, June and September
Co-chaired by Cece Russell, a member of the SPF. Contact email@example.com
Other Local Chapters
Local chapters of these organizations often allow members of our community to attend their support groups. Please consider contacting them and let us know if you join one so we can add that group to the above list:
For Other Locations
Hosting Your Own Event
Our Casual Connections are as easy as meeting for coffee or lunch. This offers opportunities to meet others, share knowledge, strategies, ideas, support, understanding, concerns, issues, solutions, research updates, tears, smiles and laughter. firstname.lastname@example.org
How to host your own rewarding event
Central Texas Summer SPF Connection
The CY2018 Austin Patient Connection was held Saturday, August 25, 2018 at a Texas Land and Cattle Restaurant, in Austin, Texas with eleven in attendance. Former attendees and new friends were made with sharing of experiences, information, and asking questions regarding Hereditary Spastic Paraplegia (HSP) and Primary Lateral Sclerosis (PLS).
Tina & Tim Croghan & Mary Schultz's 3rd Annual Trivia Night is a Huge Success
SPF Missouri's third Annual SPF Trivia Night was held on Saturday, April 21st at Maryland Heights Community Center (St. Louis area). Everyone there enjoyed the trivia competition and bid on the many Silent Auction items donated to SPF.
The evening began with a brief PSA video about SPF and then on to the ten rounds of trivia, with one dedicated to bringing awareness to the audience.
The Trivia Night yielded over $5,000 for SPF. Now that is no trivial matter!