CONGRATULATIONS! We actually beat our goal by a long shot!
Our goal was to reach the matching donation of $150,000 and we overshot that amount by a good amount! You along with the rest of our donor family donated over $234,000. That ,combined with the $150,000 match means we raised more than $384,000 in two months! That is GREAT and will make a world of difference for people with HSP and PLS. This means we will be able to support over $600,000 worth of research projects in the year of 2019. Our Scientific Advisory Board has been working for months on the research projects that have been proposed for our support and they are about to complete their advice for us on what we should be supporting.
Every year science progresses many, many steps forward over what was known and could be done the year before. We have gone from doing research to fill text books to today where the actual light of a cure is within sight and within hope. It is an exciting time to be alive and especially an exciting time to be working toward the day when we can offer sincere hope for a cure for HSP and PLS.
Thank all of you who donated to this very worthy cause that is offering an awesome promise of a new life for over 100,000 people suffering from HSP and PLS on this planet.
It is not too late. Our annual anonymous donor continues to match all donations made on a monthly or quarterly basis. If you would like to have your donations matched, just post your donation on a convenient monthly or quarterly basis. Just click below and check the monthly or quarterly option. Pick an amount that works for you.
Thank you again!!!
Join Us and Stay Informed
When Clinical Trials begin in 2019 it may require as many people as possible for the Clinical Trial to be effective. If you have HSP or PLS, please add your information to our data base so we can keep you informed. We are missing a lot people's email address, so if you just want to add your email address. just enter your name, address and email and we'll add it. That way, we will be able to reach you quickly at a lower cost. Your privacy is very important to us. We will never share any of your information with any individual or company without your permission.
An Organization You Can Trust
87 cents of every dollar you donate goes into our mission of research and service. 7 cents goes to fundraising and 6 cents goes to data management and general expenses. Our all volunteer Scientific Advisory Board makes sure that we are supporting only the very best research projects on the planet. The Spastic Paraplegia Foundation is an all volunteer run foundation. Our highly skilled staff, Scientific Advisory Board, Medical Advisors, CPA, Attorney, President, Board Members - all of us are working hard every day probono because we strongly believe in this cause. We know a cure is right within reach and we ask you to please join us in reaching by making a tax deductible donation.